David’s Story

By all accounts, David Brown is a big personality. A retired DC police officer, David, 75, is “a pillar of our community, mentor and friend to many, and the backbone of our family,” said daughter Thia Jackson.

So, when the man they had always counted on became increasingly forgetful, the Brown family knew something was wrong. An explanation finally came in 2018, when David was diagnosed with Lewy body dementia. “Never in a million years did we think this would be the health concern my intelligent, wise dad would face,” said Thia, adding that the diagnosis left the family shocked.

Like David, there are approximately 9,000 people in the District who are diagnosed with dementia each year.

With those numbers on the rise, Iona and Sibley Memorial Hospital joined forces (with individual philanthropy and funding from the DC Department of Aging and Community Living) to offer a citywide program to support families like the Browns.

Called Club Memory (R), the program offers a stigma-free social environment where families get both practical and emotional support. At each session, Sibley’s community dementia program managers offer thoughtfully selected and evidence-based activities such as trivia, puzzles, sing-a-longs, and sharing of resources and conversation. At the same time, embedded within the program are Iona’s expert dementia navigators, who help participants tap into the services and support they need.

“People living with dementia and their family members frequently have a hard time getting information about their diagnosis, accessing available services, and obtaining advice and support through their journey,” says Melissa Susser, one of Iona’s dementia navigators. “That’s where Iona comes in.”

With Melissa’s help, the Browns were able to “get out in front of the disease,” said Thia.

In the past year, Melissa has conducted a home assessment, created a personalized plan, helped the Browns access medical specialists, and connected David to adult day health programs and transportation resources.

“Melissa put a system in place so that our dad is getting the care he needs, and our mom is getting the support and respite she needs. As a result, we are all feeling less overwhelmed,” said Thia, who calls Melissa “our rock”. Sisters Ericka and DeAndra and mom Renee echo Thia’s appreciation.

“This is still new to us,” says Thia. “Looking back on the past year, I can see how much we have learned and grown as a family. We get strength and comfort in knowing we are not alone.”